PELVIC ROAR ONLINE WORKSHOP ON PELVIC HEALTH IN HUMANITARIAN EMERGENCIES

WORKSHOP: HOW PELVIC HEALTH PROFESSIONALS CAN HELP SUPPORT PEOPLE LIVING WITH OR AT RISK OF INCONTINENCE IN HUMANITARIAN EMERGENCIES?

When: 11 March, 8pm-9.30pm (UK time)

Where: Zoom (link sent to the enrolled participants on the date of the webinar)

Enrolment: by 10 March, through this link https://forms.office.com/e/tSyL1v1K1k

Further information: Tiina Vaittinen, Tampere University, tiina.vaittinen AT tuni.fi

Humanitarian organisations are increasingly developing their practices of aid to better meet the needs of people who live with incontinence. For instance, in 2022 the Norwegian Church Aid published a vast report Mapping of Support for People Living with Incontinence in Humanitarian Contexts, and presently Oxfam, together with its partner organisations HelpAge International and Malawi Network of Older People’s Organisations (MANEPO), is conducting a multi-country study Improving the Lives of Older People with Incontinence.

It has come to our attention that this work would greatly benefit from the expertise of pelvic health professionals, particularly in relation to practices of preventing and mitigating incontinence in low-resource settings.

To crowdsource knowledge for the utilisation of the humanitarian field, Pelvic Roar is organising an online workshop on 11 March, 8pm (UK time). The workshop is co-organised by Myra Robson from Pelvic Roar, Tiina Vaittinen from the Pad Project at Tampere University, and Michelle Farrington from Oxfam.

WORKSHOP AIMS

The aim of the workshop is two-fold: First, to provide pelvic health professionals with knowledge on the present practices of aid for persons with incontinence and how to get involved and, secondly, to jointly map the possibilities of pelvic floor physiotherapy in these contexts. Detailed programme below.

COLLECTION OF DATA DURING THE WORKSHOP

The workshop participants will contribute to the cocreation of expertise, which requires some data collection practices. We will not record the workshop, but during the small group discussions, we use Flinga (a digital white board) where the participants will type (anonymous) notes on the ideas that arise in the discussion. In addition, after the workshop individual participants will have a possibility to submit in further ideas through a Microsoft Forms link, if they wish to do so.

STORAGE, PROCESSING AND ARCHIVING OF THE WORKSHOP DATA

All data is collected anonymously and stored behind passwords in Tampere University, where it is initially processed by Tiina Vaittinen. The data will be processed as little as possible, and it mainly means moving text from Excel files into a more presentable format, after which it will be posted on the Pelvic Roar homesite, for anyone to utilise. After this, the original files will be removed from the Tampere University server, where the data is initially stored.

ANONYMITY

The anonymity of the workshop participants will be secured in the processing of the data and publication of the workshop results. However, given that the workshop collects knowledge from experts of their own fields, it is possible for the participants to have their names acknowledged as co-creators of the knowledge, upon publication of the workshop results. We will ask about this in the enrolment form and will contact all participants once the results are posted on Pelvic Roar homesite.

WORKSHOP PROGRAMME

8.00 pm Welcome and short introduction to the programme, Tiina Vaittinen, Tampere University

8.05-8.20 Challenges of continence care in humanitarian emergencies and why we need more knowledge from pelvic health professionals, Michelle Farrington, Oxfam

8.20-8.30 Introduction to the workshop methods used in small groups, Tiina Vaittinen, Tampere University

8.30-9.00 In small groups: Mapping the potential of pelvic health professionals to help different patient groups to maintain continence health in humanitarian emergencies (Facilitated by Tiina and other volunteers from Tampere University)

9.00-9.20 Joint reflection of the small group discussions

9.20-9.30 Thank you and tips on how to get involved in humanitarian work

 

An International Multistakeholder Workshop: Register now!

CO-CREATING KNOWLEDGE ABOUT HOLISTICALLY SUSTAINABLE CONTINENCE CARE

A wooden doll sitting on the top of a pile of incontinence pads, with a picture of a landfill in the background

 

TISCARE2022 is an international multistakeholder workshop, organized by the Pad Project together with the World Federation for Incontinence and Pelvic Problems (WFIPP), at Tampere University 25-26 April 2022.

 

We bring together continence care experts in social, political, economic and health sciences, put them in the same table with continence technology specialists and engineers, experts in urban planning, architecture, waste management, and circular economy, as well as patient organizations, health professionals, and the industry, with  the aim to define, what the term “sustainable continence care” means.

The event evolves around parallel workshops, where the participants craft a shared understanding of what sustainable continence care.

In the workshops, the participants produce open access data on expert visions on sustainable future in continence care. The data will be archived after the event, so the event participants as well as others can utilise it freely for purposes of research, teaching, and innovation.

The registration for the event is now open, and the tickets will go on a first-come-first-serve basis. Book your place now!

The registration fees vary from 0 euros (patients and patient organisations) to 70 euros (regular participants) to  1,000-2,000 euros (companies).

Event homesite: https://events.tuni.fi/tiscare2022/

 

 

PAD003 What to call "it"?

Logo by Teija Hakala (c)

In the third episode of Pad Leaks (recorded over a year ago), Tiina Vaittinen discuss with Dr Christopher Chatterton. Chris is our colleague in the Pad Project, but also a coauthor in the International Continence Society (ICS) report on the terminology for “single‐use body worn absorbent incontinence products” that was published in Neurourology and Urodynamics in 2020. In this episode, we discuss with Chris, what this report was about, and what the term “single-use body worn absorbent incontinence products” refers to. We also discuss the power of stigma in talking about continence products, and how the stigma operates differently in different contexts – and different languages.

The episode was edited by Timo Uotinen.

Shadowing the shadows of the ecowelfare state: Listening to the adult incontinence pads’ parlance in the Finnish welfare state

“The ecowelfare state should be a welfare state designed
for leaking bodies.”

The first research findings published

The Pad Project team has just published its fist research results, as part of a Special Issue that deals with the ecowelfare state.

The open access article is titles “Shadowing the shadows of the ecowelfare state: Listening to the adult incontinence
pads’ parlance in the Finnish welfare state”.

The article is written in Finnish, but you can find the English abstract below. (And perhaps a certain search engine’s translation tools cam help you read the contents, too, even if you do not read Finnish.

Abstract

Adult incontinence, both urinary and faecal, are common conditions. Incontinence, however,
and the pads utilised for its management, are silenced. Like waste in the welfare state, they
are in the shadows of wellbeing and overshadowed by it. Various behavioural norms make
them invisible and unspeakable: something that should not disturb the administrative order.

Pad waste is doubly in the shadows. The incontinence pads thus mark the most silenced
corners of the welfare state. When envisioning the ecowelfare state, mapping such silences
is vital. In an ecowelfare state, ecologically sustainable good life must be guaranteed for all
bodies, also those unable to control their bladder or bowels.

In this article, we explore
the administrative discourses and silences around incontinence pads. Methodologically, the
article combines multi-sited ethnography with feminist science and technology studies and
Derridean deconstruction, to sketch potential trajectories towards the ecowelfare state
from the viewpoint of incontinence.

Drawing on data on the municipal administration of the
Finnish pad economy, we show how the ecowelfare state should be a welfare state designed
for leaking bodies. This requires adequate continence care, cure, prevention and rehabilitation,
as well as water, sanitation and hygiene (WASH) infrastructures, which sewage systems alone
do not solve.

Keywords:

adult diaper, deconstruction, ecowelfare state, incontinence

 

International ethical guidance for continence care of older adults published: The Pad Project participated in the work

 

The PI of the Pad Project, Tiina Vaittinen, partipated in the International Continence Society Ethical Committee work in writing a white paper on ethical considerations in older adults with urinary incontinence.

The white paper was published in Neurourology & Urodynamics, and it can be freely downloaded from the below link, which leads to the ICS news on the publication.

https://www.ics.org/news/1255

 

 

 

 

 

 

 

 

PAD004 Inkontinenssi ja hoivarakentaminen

Image: Teija Hakala (c)

[The episode is in Finnish] How should the spatial design of care homes take account for incontinence pads? How does the spatial design shape continence care? How could innovations in the field of construction business contribute to sustainable continence care? The guest in this episode is Maarit Kokkonen, the marketing and communication director from the construction company Sikla. Editing: Timo Uotinen (The recording has been made with both the speakers wearing a mask, which may have an impact on the sound quality.)

Will we ever see incontinence products made from 100% renewable materials?

Incontinence pads are also about forest industry

Forest industry may not be the first thing to associate with something as intimately embodied as incontinence care.

Producing the fluff to the pads’ absorbent layers, it is, however, a key industry in the production of the pads.

While solving the question of  sustainable land usage remains key for the sustainability of forest industry, it may also provide solutions for a more sustainable future for adult incontinence care.

Along with a range of experts from other fields, our project’s PI, Tiina Vaittinen, was interviewed for this podcast, produced by Stora Enso, which asks:

Will we ever see incontinence products made from 100% renewable materials?

CLICK HERE TO LISTEN

 

PAD003 Inkontinenssin etiikkaa ja taloutta synnytyksistä dementiaan

Image: Teija Hakala (c)

Tässä loppukesästä 2020 nauhoitetussa jaksossa vieraana on tutkija, fysioterapeuttitaustainen filosofi Anna Rajala. Tunnustamme – ehkä hieman banaalilla tavalla – kuinka meitä yhdistää akateeminen kiinnostus kakkaan, mutta sitten keskustelemme vakavia muun muassa dementiasta, etiikasta, synnytyksen jälkeisen inkontinenssin hoidosta ja hoitamattomuudesta – ja aina vähän taloudestakin.

Äänisuunnittelu: Timo Uotinen

Listen on Spotify or Apple Podcasts.

PAD001 Mistä niitä vaippoja saa?

Where will I get incontinence products, if I become incontinent? In this second episode of the Finnish medium podcast on incontinence, we discuss how “hoitotarvikejakelu”, i.e. the public health service responsible for pad distribution in Finland. We also reveal magical tips on how to develop the system, so that improving the service and wellbeing of the clients decreases the costs of the service… The guest in this episode is Tuulia Lahtinen, Registered Nurse and Public Health Nurse.

Image: Teija Hakala (c)

Music – purpleplanet.com: cobwebbed; clear vision; vision of the future. Sound effects – soundbible.com: Girl Pees in the Toilet by Mike Koenig; Flushing the Toilet. Graphic design: Teija Hakala.

Listen at Apple podcasts or Spotify.

PAD002 As society we don't talk about poo

Logo by Teija Hakala (c)

There are ways to restructure societies, so that people living with faecal incontinence can live good lifes with the condition – but where to start? Interview with Dr Lesley Dibley, Reader in Nursing Research and Education at the University of Greenwich, UK.

Music: Purpleplanet.com (Cobwebbed, A Fresh Start, Vision of the Future). Effects: Soundbible.com (Girl Pees in Toilet by Mike Koenig, Flushing the Toilet). Graphics: Teija Hakala.

Listen on Spotify or Apple Podcast